About Me

My photo
Ive decided to blog about our experience of having a premature baby and hopefully help others along the way.

Tuesday 22 November 2011

Long term problems

When we took Ellie home from hospital we expected some problems, we were told not to expect her to be the same as others her age so delayed in certain areas....I would say that up untill the age of 2 she was very delayed with walking, talking, social skills etc and it's only in the last 10 months that she seems to have taken off.  Yes she is still behind with her speech and she see's SALT (speech and language) for this but she is trying and thats all we can ask of her. Her walking is great and she runs and jumps like any other toddler apart from she tires quickly, she hates her buggy, but we only get to the end of our road with her walking and she wants carried.
Her main issue and it's a life long issue is her bowels, due to the amount of bowel removed in surgery due to her getting NEC, 10-17cm of small intestine and over half of her large intestine, She has been diagnosed with short gut syndrome.
This means that for her she has frequent, loose, foul smelling stools. It may take longer with potty training too.
At nearly 3 years old she doesn't sleep well and is a very fussy eater, we are being seen by gastroenerology and at present are not sure if eating causes her pain/discomfort or if she just doesn't enjoy it.
We also have the added problem of choking, she tends to prefer soft food, ie yoghurt and fruits, this could be down to a scary moment about a year ago when she choked on an apple and we ended up requiring an ambulance and Ellie needing surgery to remove it!

2 comments:

  1. Wow..whoever would have thought a piece of apple could cause so much trouble!
    NEC is the root of all evil, Smidge had it twice but thankfully they caught it in time. It sounds like Ellie has come a long way, for a baby who has been so sick. Go Ellie! Keep up the good work xxx

    ReplyDelete
  2. Hun, Ive noticed you haven't been blogging lately :-( If you would like to join a facebook group of premmy mum bloggers then just send me a message at diaryofapremmymum@gmail.com, would be great to see your blog up and running again and we'd love to read xxx

    ReplyDelete